The results of our latest DELPHI study engaging stakeholders in health research regulation about possible reforms. There are some fascinating results about appeals to proportionality, public interest and the importance of co-production of regulation. The full open access article can be found here.
Latest article for Journal of Medical Ethics ‘Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives?’
Our article on Navigating Familial Genetic Risks is now available here at the Journal of Medical Ethics.
We would like to thank all who took part in our Liminal Spaces symposium on duties of care and genetic/genomic information!
Katy McMillan blog with Journal of Medical Ethics ‘Alexa, does this look infected? – We need to talk about safely regulating the digitisation of healthcare, now.’
Katy McMillan’s most recent blog with Journal of Medical Ethics ‘Alexa, does this look infected? – We need to talk about safely regulating the digitisation of healthcare, now.’ Read it here:
Fletcher coordinates session during Edinburgh International Science Festival ‘Should We Give Up Meat to Save the Planet?’
Should We Give Up Meat to Save the Planet?
Isabel Fletcher blogs a recap of ‘Should We All Give Up Eating Meat to Save the Planet?’, which was an event held recently in the Red Theatre at Summerhall as part of the Edinburgh International Science Festival (EISF) on the 6th April 2018. Join us over at The Motley Coat, to read more.
Our food systems are a major cause of environmental damage, linked to greenhouse gas emissions, loss of biodiversity and deforestation. Researchers and policymakers are encouraging us to adopt sustainable diets, but how do we make the right choices? And should we – as suggested by recently published guidelines in Sweden and the Netherlands – be reducing meat and dairy as these have the greatest environmental impact? Or should we be supporting our farmers because, in the UK, livestock production is such an important part of our economy? Join us for presentations and discussion.Ticket price includes samples of three sustainable snacks provided Edinburgh Larder.
Liminal spaces colleagues publish latest article ‘Charting regulatory stewardship in health research: Making the invisible visible?’, Cambridge quarterly of healthcare ethics, Vol 27 (2018)
This article analyses a hitherto largely obscured feature of regulatory environments in health research; namely, the role of regulatory stewardship. Through examples drawn from research ethics committees, emerging technologies, and governance of research resources, it outlines the essential features of regulatory stewardship, and argues that this concept can demonstrate considerable added value for all parties in delivering and benefiting from efficient and effective navigation of regulatory landscapes. It offers an exposition of the normative principles and associated responsibilities of the concept. The extant invisibility of regulatory stewardship requires fuller recognition and better integration of the approach into the effective functioning of law and regulation in the health research context.
‘Charting regulatory stewardship in health research: Making the invisible visible?’
Graeme Laurie, Edward S. Dove, Isabel Fletcher, Agomoni Ganguli-Mitra, Catriona McMillan, Nayha Sethi, Annie Sorbie, (2018) In: Cambridge quarterly of healthcare ethics, Vol 27, pp 333-347