Research by the Mason Institute’s Graeme Laurie and Nayha Sethi conducted as part of work for the Scottish Health Informatics Programme (SHIP) and the Farr Institute on robust governance of data sharing practices has been widely endorsed and supported by a new report by the Irish Health Research Board (HRB). The new report outlines the infrastructure and services needed in Ireland to allow safe access, storing, sharing, and linking data for research.
Dangerous Spaces engage regulatory hindrances that contribute to the notorious Valley of Death in commercial innovations.
Risk to the Wellcome Trust vision of achieving extraordinary improvements in human and animal health lies not only in actual and perceived regulatory impediment, but also in actual and perceived barriers to the realisation of public benefit. One such example is the prospect of profit, which can turn a promising space of enquiry into a dangerous space of commercial risk and public suspicion.
This spaces will address the following research questions:
- How can public interest and public benefit be more effectively reflected in HRR?
- What must be done to translate ideological commitment to openness and public benefit into the acceptable praxis of health research involving commercial interests?