Journal Articles

2018

‘Better governance, better access: Practising responsible data sharing in the METADAC governance infrastructure’
Murtagh, M.J., Blell, M.T., Butters, O.W., Cowley, L., Dove, E.S., Goodman, A., Griggs, R.L., Hall, A., Hallowell, N., Kumari, M., Mangino, M., Maughan, B., Mills, M. C., Minion, J. T., Murphy, T., Prior, G., Suderman, M., Ring, S. M., Rogers, N. T., Roberts, S. J.& 6 others (2018) In: Human genomics. 12, 1, p. 1-12 24

‘Charting regulatory stewardship in health research: Making the invisible visible?’
Graeme Laurie, Edward S. Dove, Isabel Fletcher, Agomoni Ganguli-Mitra, Catriona McMillan, Nayha Sethi, Annie Sorbie, (2018) In: Cambridge quarterly of healthcare ethics, Vol 27, pp 333-347

‘Including all voices in international data-sharing governance’
Kaye, J., Terry, S. F., Juengst, E., Coy, S., Harris, J. R., Chalmers, D., Dove, E. S., Budin-Ljøsne, I., Adebamowo, C., Ogbe, E., Bezuidenhout, L., Morrison, M., Minion, J. T., Murtagh, M. J., Minari, J., Teare, H., Isasi, R., Kato, K., Rial-Sebbag, E., Marshall, P. & 2 others  (2018) In : Human genomics. 1213p. 1-6

2017

Approaching Ethics Review Equivalency Through Natural Justice and a ‘Sounding Board’ Model for Research Ethics Committees
Townend D., Dove E.S. In: Medicine and Law 2017; 36(1): 61–86.

Beyond Individualism: Is There a Place for Relational Autonomy in Clinical Practice and Research?
Dove E.S., Kelly S.E., Lucivero F., Machirori M., Dheensa S., Prainsack B. In: Clinical Ethics (2017, in press). DOI: 10.1177/1477750917704156

Charting regulatory stewardship in health research: Making the invisible visible?
Ganguli-Mitra, A., Laurie, G., Dove, E.S., Fletcher, I., Sethi, N., Sorbie, A. & McMillan, C. Jul 2017 In : Cambridge quarterly of healthcare ethics

Criminal Prohibition of Wrongful Re-identification: Legal Solution or Minefield for Big Data?
Phillips M., Dove E.S., Knoppers B.M. In: Journal of Bioethical Inquiry 2017; 14(4): 527–539.

Liminality and the limits of law in health research regulation: What are we missing in the spaces in-between?
Laurie, G. 2017 In : Medical Law Review. 251p. 47-72 26 p.

Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?
Shabani M., Dove E.S., Murtagh M., Knoppers B.M., Borry P. In: Biopreservation and Biobanking 2017; 15(5): 469–474.

Reconfiguring social value in health research through the lens of liminality
Ganguli Mitra, A., Dove, E.S., Laurie, G. & Taylor-Alexander, S. Feb 2017 In : Bioethics. p. 87-96

When Can the Child Speak for Herself? The Limits of Parental Consent in Data Protection Law for Health Research
Mark J Taylor Edward S Dove Graeme Laurie David Townend; NOv 2017 In: Medical Law Review.

2016

ABC v St George’s Healthcare NHS Trust and Others: Should There be a Right to be Informed about a Family Member’s Genetic Disorder?
Dove E.S.  In: Law and the Human Genome Review 2016; 44(1): 91–112

Beyond regulatory compression: Confronting the liminal spaces of health research regulation
Taylor-Alexander, S., Dove, E.S., Ganguli Mitra, A., Laurie, G., Fletcher, I. & McMillan, C. Dec 2016 In : Law, Innovation and Technology. 82p. 149-176 27 p.

Conference Report: Liminal Spaces Symposium at the IAB 2016: What Does it Mean to Regulate in the Public Interest?
Dove,E.S., Fletcher, I., Ganguli Mitra, A., Laurie, G.T, McMillan, C., Sethi, N., Sorbie,A., and Taylor-Alexander, S.

Conference report: 13th World Congress of the International Association of Bioethics, Edinburgh 14-17 June 2016 (IAB2016)
Dove,E.S., Fletcher, I., Ganguli Mitra, A., Laurie, G.T, McMillan, C., Sethi, N., Sorbie,A., and Taylor-Alexander, S.

Elberte v. Latvia: Whose tissue is it anyway ? Relational autonomy or the autonomy of relations?
Dove, E.S., Ganguli Mitra, A., Laurie, G.T., McMillan, C., & Taylor-Alexander, S. 2016 In : Medical Law International. 15 (2-3): 77-96

Ethics review for international data-intensive research
Dove, E.S., Townend, D., Meslin, E.M., Bobrow, M., Littler, K., Nicol, D., De Vries, J., Junker, A., Garattini, C., Bovenberg, J., Shabani, M., Lévesque, E., & Knoppers, B.M. 2016 In : Science. 351 (6280): 1399-1400
doi:10.1126/science.aad5269

Sharing Health-Related Data: A Privacy Test?
Dyke S.O.M., Dove E.S., Knoppers B.M. IN: npj Genomic Medicine 2016; 1, Article number 16024: 1–6. doi: 10.1038/npjgenmed.2016.24.

Streamlining Ethical Review of Data Intensive Research
Townend D., Dove E.S., Nicol D., Bovenberg J., Knoppers B.M.  BMJ 2016; 354: i4181.

2015

Consent and Anonymisation: Beware Binary Constructions
Dove, E.S & Laurie, G. 9 April 2015 In: BMJ.
doi:10.1136/bmj.h1139

Liminality, possibility, and imperative: Performing the other in face transplantation
Taylor-Alexander, S. 2015. In: Medicine Anthropology Theory. 2(1): 165-174.

The social licence for research: why care.data ran into trouble
Carter, P., Laurie, G. & Dixon-Woods, M. 2015 In: Journal of Medical Ethics.
doi:10.1136/medethics-2014-102374